Central Cyanosis

So, it's been happening at least once a day. This weekend was the first time my friend got to actually see Jack's lip start to turn blue, turn purple, & go back to normal. It seems to happen the most when he's active; and I'm not talking super active. He was just bouncing around in his chair at breakfast Sunday morning when his lip started to change color. It was odd & a little weird. His hands get really cold too.

Like I've said, I don't know why this is happening again. I just keep track of it. :)

In the meantime, we're battling strep throat & a stomach flu.. fun times. Jack is the only one who's not sick, and I'm only mildly sick at that. I'm trying to quarantine us. Ha ha.

Here we go (again?)

I honestly don't know what to make of things.. Monday, Tuesday, & Wednesday of this week, Jack has had prolonged central cyanotic episodes. I even took him to the ER on Monday, just to get him checked out. We don't have a regular cardiologist out here yet, as I'm still waiting on medicaid. All his tests came back fine, but they did an EKG and x-rays.. I want an echo done, but obviously can't afford it right now.

I'm worried. I talked to my sister, whose daughter has a leaky valve (amongst other things), and she suggested that Jack might be a bit leaky too because her daughter gets the same way.

I've been recording the episodes in a notebook, and so far there's no rhyme or reason to it.

I just want him to be okay. I really don't want to go through all this again..