<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/' xmlns:georss='http://www.georss.org/georss' xmlns:gd='http://schemas.google.com/g/2005' xmlns:thr='http://purl.org/syndication/thread/1.0'><id>tag:blogger.com,1999:blog-1256736395250901900</id><updated>2011-07-28T16:54:20.930-07:00</updated><category term='doctor'/><category term='chd awareness'/><category term='central-cyanosis'/><category term='jack'/><category term='perfect'/><category term='promise'/><category term='family'/><title type='text'>Following Jack's Heart</title><subtitle type='html'></subtitle><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/posts/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default?max-results=100'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/'/><link rel='hub' href='http://pubsubhubbub.appspot.com/'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>24</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>100</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-197293564996503004</id><published>2010-07-04T13:05:00.000-07:00</published><updated>2010-07-04T13:08:13.039-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='jack'/><title type='text'>Good News</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;I forgot to update, but Jack had his cardiology follow-up a few weeks ago. The doctor listened to his heart and various pulse rates, and declared him healthy. Just to be certain, we went back later in the day for an echo. That came back clear and fine.&lt;br /&gt;&lt;br /&gt;He's healthy as a clam and his heart is working properly, and there's absolutely nothing wrong with him. :) We are very happy and relieved.&lt;br /&gt;&lt;br /&gt;The doctor also said Jack doesn't need to be seen for &lt;span style="font-style: italic;"&gt;at least&lt;/span&gt; five years. Yay!&lt;span style="font-style: italic;"&gt;&lt;span style="font-style: italic;"&gt;&lt;span style="font-style: italic;"&gt;&lt;span style="font-style: italic;"&gt;&lt;/span&gt;&lt;/span&gt;&lt;/span&gt;&lt;/span&gt;&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-197293564996503004?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/197293564996503004/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=197293564996503004&amp;isPopup=true' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/197293564996503004'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/197293564996503004'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2010/07/good-news.html' title='Good News'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-4740619632796648087</id><published>2010-04-26T15:56:00.000-07:00</published><updated>2010-04-26T16:01:41.813-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='family'/><category scheme='http://www.blogger.com/atom/ns#' term='central-cyanosis'/><title type='text'>Central Cyanosis</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;So, it's been happening at least once a day. This weekend was the first time my friend got to actually see Jack's lip start to turn blue, turn purple, &amp;amp; go back to normal. It seems to happen the most when he's active; and I'm not talking super active. He was just bouncing around in his chair at breakfast Sunday morning when his lip started to change color. It was odd &amp;amp; a little weird. His hands get really cold too.&lt;br /&gt;&lt;br /&gt;Like I've said, I don't know why this is happening again. I just keep track of it. :)&lt;br /&gt;&lt;br /&gt;In the meantime, we're battling strep throat &amp;amp; a stomach flu.. fun times. Jack is the only one who's not sick, and I'm only mildly sick at that. I'm trying to quarantine us. Ha ha.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-4740619632796648087?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/4740619632796648087/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=4740619632796648087&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/4740619632796648087'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/4740619632796648087'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2010/04/central-cyanosis.html' title='Central Cyanosis'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-5397211992441213057</id><published>2010-04-15T08:22:00.000-07:00</published><updated>2010-04-15T08:26:35.127-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='jack'/><category scheme='http://www.blogger.com/atom/ns#' term='central-cyanosis'/><title type='text'>Here we go (again?)</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;I honestly don't know what to make of things.. Monday, Tuesday, &amp;amp; Wednesday of this week, Jack has had prolonged central cyanotic episodes. I even took him to the ER on Monday, just to get him checked out. We don't have a regular cardiologist out here yet, as I'm still waiting on medicaid. All his tests came back fine, but they did an EKG and x-rays.. I want an echo done, but obviously can't afford it right now.&lt;br /&gt;&lt;br /&gt;I'm worried. I talked to my sister, whose daughter has a leaky valve (amongst other things), and she suggested that Jack might be a bit leaky too because her daughter gets the same way.&lt;br /&gt;&lt;br /&gt;I've been recording the episodes in a notebook, and so far there's no rhyme or reason to it.&lt;br /&gt;&lt;br /&gt;I just want him to be okay. I really don't want to go through all this again..&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-5397211992441213057?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/5397211992441213057/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=5397211992441213057&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5397211992441213057'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5397211992441213057'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2010/04/here-we-go-again.html' title='Here we go (again?)'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-7467589159055654375</id><published>2010-03-29T18:28:00.000-07:00</published><updated>2010-03-29T18:40:00.249-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='chd awareness'/><category scheme='http://www.blogger.com/atom/ns#' term='promise'/><title type='text'>It's been a while...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;It's been a few years since I've written in here, mainly because I have been enjoying life. Jack is doing fabulously. We have had no stress in that area of our lives.&lt;br /&gt;&lt;br /&gt;After I finished this blog, I thought to myself, &lt;span style="font-style: italic;"&gt;Well, thank goodness all that is over!&lt;/span&gt; But it's simply not true. It's not over; yes, it's over for our family, but many many others are dealing with their own CHD children &amp;amp; babies, &amp;amp; even adults. I've decided that if I'm going to become an advocate for anything, it should be for CHD Awareness.&lt;br /&gt;&lt;br /&gt;We were lucky enough to have doctors who ACTED. Doctors who truly cared about Jack's welfare &amp;amp; wanted to see him healed as much as we did. Some families don't have that. And some families just want to know they're not alone in their battles. And we, the CHD community, want to see more tests performed at birth. We want MORE awareness for this disease! There are so so many heartbreaking stories out there of babies who have died, but wouldn't have died if they'd only been given this or that SIMPLE test at birth. We want more research done on CHDs. We want more options other than open heart surgery. Too many people don't know that their child could possibly have a congenital heart defect, and too many don't know where to turn when they find out about it.&lt;br /&gt;&lt;br /&gt;I created this blog so that hopefully someone, somewhere, would find it &amp;amp; would find comfort in knowing that someone has gone through something similar. But I'm finding that's not enough. I want to spread CHD Awareness to every facet of my life. I want it to reach out and touch everyone I meet. I will be an advocate for families, for doctors, for researchers. I will be a shoulder, an ear. I want to be to the CHD community what so many families were to MY own family, during our difficult journey.&lt;br /&gt;&lt;br /&gt;This is my promise. :)&lt;br /&gt;&lt;br /&gt;&lt;img src="http://farm3.static.flickr.com/2702/4455650731_52fa6eef4d_o.jpg" width="95" height="71" alt="Emily_sig" /&gt;&lt;br /&gt;&lt;br /&gt;&lt;img src="http://farm5.static.flickr.com/4054/4462568169_577a4e2d1b_o.jpg" width="370" height="146" alt="CHD_sig1" /&gt;&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-7467589159055654375?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/7467589159055654375/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=7467589159055654375&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7467589159055654375'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7467589159055654375'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2010/03/its-been-while.html' title='It&apos;s been a while...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-5671012813454936307</id><published>2008-02-27T21:47:00.000-08:00</published><updated>2008-02-27T21:56:07.377-08:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='jack'/><category scheme='http://www.blogger.com/atom/ns#' term='perfect'/><title type='text'>Perfect</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Jack saw Dr Wong today. He had an Echo and an EKG. Dr Wong said everything looks perfect--Jack's heart looks great, the patch looks great (and is doing its job), there's no more shunting...&lt;br /&gt;&lt;br /&gt;He said we go back in 3 months and, after that, not for a year or two.&lt;br /&gt;&lt;br /&gt;We are all SO relieved! He's a normal little boy now!&lt;br /&gt;&lt;br /&gt;Oh, and if he gets any dental work, he'll only need antibiotics until July 17, 2008... not for the rest of his life, like we originally thought.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;Thank you, thank you to: Dr Trento (surgeon), Dr Wong (cardiologist), Dr Ferry (cath lab surgeon + cardiologist), Dr Cheng (surgeon), Ann (surgical nurse practitioner), and the ICU team at Cedars Sinai. This would not have been possible without them and their expertise.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;Yay!! :D&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-5671012813454936307?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/5671012813454936307/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=5671012813454936307&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5671012813454936307'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5671012813454936307'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2008/02/perfect.html' title='Perfect'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-5951172757254858844</id><published>2008-01-24T07:14:00.000-08:00</published><updated>2008-12-08T22:41:06.089-08:00</updated><title type='text'>Jack's Surgery and Aftermath</title><content type='html'>&lt;span style="font-family:trebuchet ms;"&gt;I've been seriously putting this off, and I'm so sorry.&lt;br /&gt;&lt;br /&gt;January 17: We took Jack in for his surgery at Cedars-Sinai Medical Center. From past experience (watching other people go through similar things), we expected the surgery to last at least five hours. It didn't. He was on and off bypass in an hour, and the surgery itself took about two hours. The thing that took the longest was getting him prepped, and taking him off the respirator.&lt;br /&gt;&lt;br /&gt;Seeing him in the PICU was a bit of a shock. We were slightly prepared beforehand, but it's very different when it's your own baby. After washing my hands, I ran to his side and nearly cried. C nearly passed out. Jack was hooked up to various IVs, had an oxygen mask on (his breathing was torturous, at best), and had a chest tube in (you could see the blood/fluids being drained from his chest). *shudder* He's a strong little man, though.&lt;br /&gt;&lt;br /&gt;He spent one night in the PICU (his nurse that first day totally reminded me of my sister B--same smile, same sweetness, same calming attitude... it was very nice), and two nights in the pediatrics floor. We were sent home Sunday afternoon.&lt;br /&gt;&lt;br /&gt;The doctor had told us that he wanted Jack up and walking the day after surgery; we didn't believe it was possible. Sure enough, he walked around a little bit. Two days post-surgery, he was walking, running, trotting--basically, he ruled the halls of the pediatrics floor; he acted like he owned the place.&lt;br /&gt;&lt;br /&gt;The incision itself is a work of beauty. It looks like Jack just got a giant cut on his chest... it doesn't look like he just had open heart surgery. He's healing very fast, and is doing so well. He's still on a Motrin regimen, simply because it's still very painful for him. He also had Tylenol with Codeine "as needed for pain", which we've had to use a few times.&lt;br /&gt;&lt;br /&gt;What a trooper!&lt;br /&gt;&lt;br /&gt;A couple pictures...&lt;br /&gt;Two days post-surgery:&lt;br /&gt;&lt;/span&gt;&lt;a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_ISebrzUTIis/R5iuCJmlQ7I/AAAAAAAAAWQ/kUMuP-BIWqQ/s1600-h/101_2971.JPG"&gt;&lt;img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer;" src="http://4.bp.blogspot.com/_ISebrzUTIis/R5iuCJmlQ7I/AAAAAAAAAWQ/kUMuP-BIWqQ/s320/101_2971.JPG" alt="" id="BLOGGER_PHOTO_ID_5159064725113619378" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Almost one week post-surgery:&lt;br /&gt;&lt;/span&gt;&lt;a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_ISebrzUTIis/R5iuCZmlQ8I/AAAAAAAAAWY/26qRTVDLHR0/s1600-h/101_2987.JPG"&gt;&lt;img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer;" src="http://1.bp.blogspot.com/_ISebrzUTIis/R5iuCZmlQ8I/AAAAAAAAAWY/26qRTVDLHR0/s320/101_2987.JPG" alt="" id="BLOGGER_PHOTO_ID_5159064729408586690" border="0" /&gt;&lt;/a&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;A lot of thanks are in order for: Dr Trento and his team of surgeons and doctors (including Ann, the cardiac nurse practitioner), Dr Wong, Dr Ferry, the Doctors and Nurses on the Pediatrics floor, the Nurses in the PICU (including Dr Amer in the PICU). Also: my family (brothers, sisters, parents, aunts, uncles, cousins, nieces &amp;amp; nephews, inlaws, etc) and my small, but tight, groups of various friends. Also also: C's coworkers &amp;amp; bosses, the vendors C calls daily (for their continued thoughts and prayers), and C's customers. Also x3: B&amp;amp;E Sales for the teddy bear that Jack says is "MINE!!!" and won't let his brother near. :)&lt;br /&gt;&lt;br /&gt;Everyone has been incredibly supportive during this time, and has shown so much love and kindness and understanding. We really are blessed to have such a large group of friends and family, who have been praying for us and thinking about us--well, mostly Jack--during this whole ordeal.&lt;br /&gt;&lt;br /&gt;Long story short: THANK YOU EVERYONE! WE LOVE YOU TOO! :D&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-5951172757254858844?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/5951172757254858844/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=5951172757254858844&amp;isPopup=true' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5951172757254858844'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5951172757254858844'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2008/01/jacks-surgery-and-aftermath.html' title='Jack&apos;s Surgery and Aftermath'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><media:thumbnail xmlns:media='http://search.yahoo.com/mrss/' url='http://4.bp.blogspot.com/_ISebrzUTIis/R5iuCJmlQ7I/AAAAAAAAAWQ/kUMuP-BIWqQ/s72-c/101_2971.JPG' height='72' width='72'/><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1384144092215005037</id><published>2008-01-15T07:21:00.000-08:00</published><updated>2008-01-15T07:24:27.321-08:00</updated><title type='text'>more pre-op</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;This morning, we--C, Jack, and I--drove out to Cedars. It took us almost 2 hours to drive 30 miles. TWO HOURS. We decided, while sitting in horrible SoCal traffic, that we're going to call the hotel and see if we can get our stay extended, from Wednesday night on. Because, well, we don't want to wake up at 3am Thursday morning just to get our butts out to Cedars by 5:30am that morning. (We booked a hotel that's a little over a mile from Cedars-Sinai for the weekend, so we'll be using that as our "home base".)&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Anyway... We parked, got the xray films, and took them over to the surgeon's office. We didn't have to wait long before the nurse saw us and took a general history of Jack, weighed and measured him, etc. Then we were sent over to the South Tower for blood stuff. We had to wait to be called to be registered for the bloodwork. Then wait some more for the paperwork. Then we went to the lab where it took all of 5 minutes for them to draw one vial of blood from Jack. They were sooo good there. And it helped that the nurse from the surgeon's office put a cream in the crook of Jack's arm that numbs it--he only cried while his blood was being drawn because he was watching them stick the needle in. Silly child. :p&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;And then we were done. We got home just after 12pm (we left this morning at about 7:45am). I dropped off C, and went to pick up Arlo from school.&lt;br /&gt;&lt;br /&gt;My next update will be from the hospital, on Thursday.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1384144092215005037?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1384144092215005037/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1384144092215005037&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1384144092215005037'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1384144092215005037'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2008/01/more-pre-op.html' title='more pre-op'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1171439005143235100</id><published>2008-01-07T16:59:00.000-08:00</published><updated>2008-01-07T17:08:12.458-08:00</updated><title type='text'>EKG and XRays</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;This morning, we took Jack out to his doctor to get an EKG. It was relatively simple, and we got a copy of it. It seems similar to the others he's had (we have a full copy of his medical record), so nothing has changed.&lt;br /&gt;&lt;br /&gt;We had an appointment to get some chest x-rays at 1:30pm, but we were done at the doctor's at about 10:30am, so we just made our way over to the imaging center. We got lost. Beverly Hills is confusing! Ugh. Finally, after getting turned around, I got us going in the right direction, and we made it all right. We got in there and were a couple hours early, but since we had that later appointment, we got put in almost right away. We barely had to wait at all.&lt;br /&gt;&lt;br /&gt;I got to stay with him, and he was really good, but a little squirmy. The technician checked that the x-rays were okay, and then it was time to go. All of that--the EKG and x-rays--took about 2 hours. Not too bad. We headed home straight-away, and picked up Arlo from our friend's house; it was his first day back at school, so she took him and picked him up. (This school year, I took extra precautions because I knew we'd be going through all this, so I put our friends and extra family members on the "pick up" list for Arlo's school.)&lt;br /&gt;&lt;br /&gt;We came home and all crashed. It was very tiring. We have to go back next monday and do more tests, paperwork, etc.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1171439005143235100?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1171439005143235100/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1171439005143235100&amp;isPopup=true' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1171439005143235100'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1171439005143235100'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2008/01/ekg-and-xrays.html' title='EKG and XRays'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-7209878163900670476</id><published>2008-01-02T18:38:00.000-08:00</published><updated>2008-01-02T18:47:46.896-08:00</updated><title type='text'>our schedule</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;January 7: we'll go to Jack's doctor and get an EKG, and then we'll head over to Cedars-Sinai and get his chest x-rays done.&lt;br /&gt;&lt;br /&gt;January 14: we go back to Cedars-Sinai for blood work, make sure they have the x-rays, and I think a few other tests. I can't remember all the details, but we have to be at certain offices at certain times... we'll pretty much be spending our day there, running around the hospital from place to place.&lt;br /&gt;&lt;br /&gt;January 17: Jack's surgery. We have to be at the hospital at 5:30am. They have a Starbucks there, so I'll purchase a one-day pass from T-Mobile and send out periodic updates. Assuming all goes well (and we should always hope for the best), he'll spend one night in the ICU, and another 3-5 days in a regular hospital room. At least he'll get to play in the playroom this time around. :)&lt;br /&gt;&lt;br /&gt;That's it. Of course I'll post updates after each significant date (7th, 14th), but that's the gist of it. We have only been able to find one person with O- blood--my brother in law--but he's all the way in Utah, and we really don't want to have to pay the transit costs for getting it out here, should he donate. So, I guess we'll be relying on the general public's donations; which is fine, but we would have rather been able to do direct donations.&lt;br /&gt;&lt;br /&gt;Pray for us.&lt;br /&gt;&lt;br /&gt;P.S. I know we have a ton of support as we're going through everything. As the surgery date approaches, I am more and more grateful for the large support groups (aka: cheerleading sections *grin*) we are fortunate to have. Thank you all, for your love, kind thoughts, good karma, well-wishes, and prayers.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-7209878163900670476?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/7209878163900670476/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=7209878163900670476&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7209878163900670476'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7209878163900670476'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2008/01/our-schedule.html' title='our schedule'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-5210135247213786850</id><published>2007-12-18T20:58:00.001-08:00</published><updated>2007-12-18T20:59:44.067-08:00</updated><title type='text'>One month to go...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Jack's surgery is next month. I haven't quite figured out how I feel about it. I'm scared, mostly. We have a lot to do in the two weeks leading up to it, and afterwards as well.&lt;br /&gt;&lt;br /&gt;*sigh* I'll write more when I get my feelings all sorted out.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-5210135247213786850?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/5210135247213786850/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=5210135247213786850&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5210135247213786850'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/5210135247213786850'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/12/one-month-to-go.html' title='One month to go...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-6894113751035171228</id><published>2007-11-27T10:25:00.000-08:00</published><updated>2007-11-27T10:30:53.846-08:00</updated><title type='text'>Dr Trento &amp; Surgery</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Just before the Thanksgiving holiday, we met Dr Trento. We both really like him, and know that Jack's going to be in good hands. About a week later, we received all the information for Jack's surgery. The 2 other surgeons who Dr Wong talked to about Jack's case will also be in the operating room. We're feeling very blessed right now. Dr Wong will also be there, in addition to 3 &lt;span style="font-style: italic;"&gt;more&lt;/span&gt; surgeons.&lt;br /&gt;&lt;br /&gt;Jack's blood type is O-negative, so he will need either O-negative or AB-negative blood. If anyone would like to give, or knows someone who can, you can go to the red cross after Christmas, and give a Directed Donation to him. I'll only give his information via email, so if you can do it, contact me.&lt;br /&gt;&lt;br /&gt;His surgery is slated for January 17, 2008. We have to do xrays and bloodwork on January 7th and the 14th. We're going to be very busy.&lt;br /&gt;&lt;br /&gt;We are so grateful everything's gone so well, after all the insurance mix-ups and haranguing. I'm just glad everything is going so smoothly now, and we're on the right track. :)&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-6894113751035171228?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/6894113751035171228/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=6894113751035171228&amp;isPopup=true' title='2 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/6894113751035171228'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/6894113751035171228'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/11/dr-trento-surgery.html' title='Dr Trento &amp; Surgery'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>2</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-8443909956809028193</id><published>2007-10-24T13:04:00.000-07:00</published><updated>2007-10-24T13:05:13.395-07:00</updated><title type='text'>YES!</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt; C called the medical group yesterday, and received the confirmation number for Dr Trento (surgeon).&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;font-size:+2;" &gt;YES!&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;He also scheduled a consult appointment for Nov 14th. We don't have to do anything or worry about anything until then. I am so relieved and happy and just... ah. :)&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;When Dr Wong (cardiologist) sent over Jack's medical records, he also sent a referral request marked "urgent". I think the medical group got the point that Jack's case isn't something they could dick around with.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;*does happy dance*&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-8443909956809028193?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/8443909956809028193/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=8443909956809028193&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8443909956809028193'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8443909956809028193'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/10/yes.html' title='YES!'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1505656690807893111</id><published>2007-10-18T23:11:00.000-07:00</published><updated>2007-10-18T23:12:03.807-07:00</updated><title type='text'>Commence Banging of Head Against Wall</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Yesterday, we received a letter in the mail stating that our medical group has deemed Jack's case as NON-URGENT, and was giving his doctors 45 days to send in Jack's medical records. "If the requested information is received within 45 calendar days a decision will be made within 5 business days of receipt of the information."&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Um... what??? Non-urgent??? Even Dr Wong said he wouldn't want to wait more than 6 months from the time Jack had his (failed) cath until he could have OHS. Ugh.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;So, I had C call Dr Wong and ask if they could send Jack's info over to the medical group. They were surprised because they thought everything had gone through and that we'd already consulted with the surgeon! Dr Wong said he would even send his own referral request along with the information... C said he sounded very worried that this whole process was taking so long.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Then, C called Jack's old pediatrician and asked them to send his file over as well. It'll get done sometime next week. So, hopefully we'll hear something in the next 2 weeks (????).&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;We're both so worn out and fed up with the insurance BS. It's driving everyone involved CRAZY. Why is it so f*ing difficult to see a surgeon?! Why does everything have to be such a pain?&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;I started crying after I read the letter. 45 days! I'm so glad C made the phone calls and got everyone going on this. There are some days when I just don't want to deal with it, and today was one of those days. *sigh*&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1505656690807893111?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1505656690807893111/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1505656690807893111&amp;isPopup=true' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1505656690807893111'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1505656690807893111'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/10/commence-banging-of-head-against-wall.html' title='Commence Banging of Head Against Wall'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-6174505853743471131</id><published>2007-10-17T07:05:00.000-07:00</published><updated>2007-10-17T07:10:36.089-07:00</updated><title type='text'>And So We Wait...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;I called Jack's pediatrician yesterday to see what was taking so long. We had gotten paperwork to see Dr Wong in the mail last week, but we didn't need it. We're waiting for the paperwork for Dr Trento.&lt;br /&gt;&lt;br /&gt;It sounded like there was a mix-up somewhere in the lines of communication. They were under the impression that Dr Wong was the surgeon, and I guess that's how it got presented to the medical group; which is why the referral to Dr Trento was "shut down". I explained that, no, Dr Wong was a cardiologist. They asked if I'd seen him yet. I told them that we've been going to him for a year and a half now. We just needed the authorization for Dr Trento--the s-u-r-g-e-o-n.&lt;br /&gt;&lt;br /&gt;They cleared everything up and resubmitted the referral for Dr Trento. So, we wait. Again. :)&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-6174505853743471131?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/6174505853743471131/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=6174505853743471131&amp;isPopup=true' title='1 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/6174505853743471131'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/6174505853743471131'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/10/and-so-we-wait.html' title='And So We Wait...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>1</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-3475561104855966876</id><published>2007-10-08T21:59:00.000-07:00</published><updated>2007-10-08T22:03:13.699-07:00</updated><title type='text'>The Saga Continues</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Today we saw Jack's new pediatrician. She has an office out in    Beverly Hills, right near CS Hospital. Jack's doctor is Amy Weimer; she's a young gal--looks    fresh out of med school--but a REALLY good doctor. She was efficient, but not    rushed. We gave her Jack's brief medical history. We dropped the names of Dr    Wong, Dr Ferry, and Dr Trento, and it was so nice to hear that she knows these    guys, so we didn't have to explain who they are, etc. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;She typed    everything into her computer (the way it should be), which I think is very    efficient because instead of looking back through charts (which, in my    experience, most doctors don't do), she can just click and pull up his    complete history. :) &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Anyway, she put in the referrals for Dr Wong and Dr    Trento right in the computer. She told us that, on the way out, we could pick    up the authorization number for Dr Wong (instead of the week-long wait it    normally is). The gal at the front desk said to call back later or tomorrow,    and she'd give us the authorization number for Dr Trento. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;Just like    that. No waiting, no guessing. THIS is the way medical groups should be run;    NOT the run around we always got before.&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;So, tomorrow we'll call and    get the auth # for Dr Trento, schedule a consult with him, and then schedule    surgery. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;So far, in my experience, it pays to wait for the best.    We're incredibly happy, and C and I just gave sighs of relief when we    left. :)&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;That's all. No drama. Yay!&lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt;P.S. I'll let you know how the visit with Dr Trento    goes, and when surgery is.&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-3475561104855966876?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/3475561104855966876/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=3475561104855966876&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/3475561104855966876'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/3475561104855966876'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/10/saga-continues.html' title='The Saga Continues'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-3425184605993016379</id><published>2007-09-26T07:40:00.000-07:00</published><updated>2007-09-26T07:46:43.966-07:00</updated><title type='text'>Everything's Okay...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;I talked to Dr Wong yesterday, and he didn't seem overly concerned about Jack's lack of eating, as long as he's getting nutrients somehow.&lt;br /&gt;&lt;br /&gt;However, he was worried about Jack's lack of energy, and how it's steadily decreasing. The only thing we can do, though, is wait until Jack's appointment with his new pediatrician, and wait for the referral process to go through. Dr Wong said he's going to push for surgery SOON. He sounded like he was taking my worries seriously, and he sounded a bit worried himself.&lt;br /&gt;&lt;br /&gt;I like being taken seriously by doctors. I feel like half the time I'm not...&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-3425184605993016379?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/3425184605993016379/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=3425184605993016379&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/3425184605993016379'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/3425184605993016379'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/09/everythings-okay.html' title='Everything&apos;s Okay...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-82061874438822260</id><published>2007-09-25T10:01:00.000-07:00</published><updated>2007-09-25T10:08:39.966-07:00</updated><title type='text'>I Just Don't Know...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;Jack hasn't been eating a whole lot lately. At most, he'll have one meal. I keep giving him vitamins, every day, so I think that helps. However, the lack of food is affecting his energy level... which was already down as a result of the hole/shunting.&lt;br /&gt;&lt;br /&gt;I'm worried about him. He drinks liquids just fine, so I'm thinking maybe I should buy those carnation breakfast mixes. At least he'd be getting something.&lt;br /&gt;&lt;br /&gt;No one, except Cameron (and our friends), is taking me seriously. I've heard a variety of things, some of which pointed to ME as being a "bad parent" (not quite worded that way, but I read between the lines). I put food in front of him. I offer him food. I even put it in front of his face. All to no avail. No one else sees him on a daily basis, like I do. The only time they see him is in the evening, after he's eaten dinner, when he's the most hyper (because he's actually eaten something!).&lt;br /&gt;&lt;br /&gt;I called the doctor, but I don't know what he can do, as he's not technically Jack's doctor anymore. I don't know what anyone can do, except to push push push for surgery. Soon.&lt;br /&gt;&lt;br /&gt;Ugh.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-82061874438822260?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/82061874438822260/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=82061874438822260&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/82061874438822260'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/82061874438822260'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/09/i-just-dont-know.html' title='I Just Don&apos;t Know...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-8124238881813941308</id><published>2007-09-11T15:03:00.001-07:00</published><updated>2007-09-11T15:03:39.058-07:00</updated><title type='text'>New Developments</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;In order to get the ball rolling again on Jack's surgery, we had to:&lt;/span&gt;&lt;br /&gt; &lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt; Switch Jack to the Cedars-Sinai medical group. In a month, he'll see his new pediatrician. She'll hopefully refer Jack to Dr Ferry (the doctor who tried the catheter surgery). Then, Dr Ferry will refer us to Dr Trento--the surgeon who will do the open-heart surgery.&lt;/span&gt;&lt;br /&gt; &lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt; What a run-around. Hopefully this all works out, and Jack gets everything done before Christmas!&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-8124238881813941308?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/8124238881813941308/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=8124238881813941308&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8124238881813941308'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8124238881813941308'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/09/new-developments.html' title='New Developments'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1720932118031122835</id><published>2007-08-30T13:11:00.000-07:00</published><updated>2007-08-30T13:15:03.905-07:00</updated><title type='text'>More insurance politics</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;We found out from the doctors' office today that our medical group has rejected authorization for Jack to have his open-heart surgery by Dr Trento at Cedars-Sinai Hospital. They would rather it be done at Children's Hospital or UCLA.&lt;br /&gt;&lt;br /&gt;Here we go again. Dr Trento and Dr Wong are considering writing a joint letter to the medical group to get authorization for the surgery.&lt;br /&gt;&lt;br /&gt;So, we wait.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1720932118031122835?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1720932118031122835/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1720932118031122835&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1720932118031122835'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1720932118031122835'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/more-insurance-politics.html' title='More insurance politics'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-7783994048590816092</id><published>2007-08-20T13:12:00.000-07:00</published><updated>2007-08-20T13:14:14.902-07:00</updated><title type='text'>And the ball starts rolling...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;I just got a phone call from Dr Wong (Jack's cardiologist). He said the surgeon who would do Jack's surgery is &lt;a href="http://www.csmc.edu/2507.html"&gt;Dr Trento&lt;/a&gt;.&lt;/span&gt;&lt;br /&gt; &lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt; We should get authorization for a consult by the end of the week, and hopefully have a consult scheduled in the next two weeks. It could be as soon as a month that Jack's surgery is scheduled.&lt;/span&gt;&lt;br /&gt; &lt;br /&gt;&lt;span style="font-family: trebuchet ms;"&gt; Wow. I'm very impressed with Dr Trento's bio, too. I'll report again when we have our consult. :)&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-7783994048590816092?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/7783994048590816092/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=7783994048590816092&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7783994048590816092'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/7783994048590816092'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/and-ball-starts-rolling.html' title='And the ball starts rolling...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-8812387078983911312</id><published>2007-08-16T08:48:00.000-07:00</published><updated>2007-08-16T08:55:38.022-07:00</updated><title type='text'>Jack's Follow-up</title><content type='html'>&lt;span style="font-family:trebuchet ms;"&gt;Jack had his follow-up doctor appointment today. His EKG is the same as before the surgery. They did an Echo as well, and the hole looks huge. There's a piece of the septum that was separating the 2 main holes that's now flapping around as the heart pumps. Both C and I thought it was a valve but the technician said it was the septum. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:trebuchet ms;"&gt;This time around, as we're becoming better informed, we asked more informative questions. I asked about the volume of shunting. Dr Wong explained that they use a ratio system to measure shunting. 1:1 is normal, meaning an equal amount of blood is being pumped through the lungs as it is the rest of the body. Jack's shunting ratio is 2:1, meaning that twice as much blood is going through his lungs as through his body. Dr Wong said that because Jack is symptomatic (he tires a lot quicker now than he used to) and the right side of his heart is still quite large, he'd like to have surgery done on Jack as soon as possible. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:trebuchet ms;"&gt;On Monday, he'll be at a medical conference, so he'll present Jack's case to any of the 3 heart surgeons that might be there (he said there's usually one who goes on vacation about this time), and see which guy will take the case. He'll give us a call Monday and let us know. Tomorrow, C's going to call and get a copy of the letter Dr Wong sends to Jack's pediatrician, so I'll know more specifics then. &lt;/span&gt;&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;&lt;span style="font-family:trebuchet ms;"&gt;Again, we wait. Hopefully we get this worked out soon.&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-8812387078983911312?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/8812387078983911312/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=8812387078983911312&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8812387078983911312'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8812387078983911312'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/jacks-follow-up.html' title='Jack&apos;s Follow-up'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1878398186075195430</id><published>2007-08-09T22:14:00.000-07:00</published><updated>2007-08-09T22:16:07.743-07:00</updated><title type='text'>Jack's story: Part 2 -- Dr Ferry</title><content type='html'>Our main thing that we keep telling ourselves and others is that at least they tried. They were "fiddling" with the membrane &amp;amp; different devices for over an hour, so we know they really tried their hardest. Dr Ferry, before taking Jack in, told C (my husband) that there was about an 80% chance that they would be successful, but he wouldn't try to fix things if it would cause more harm than good. When Dr Ferry came out that last time, he said that the 80% chance steadily went down and down the more they fiddled, and they may have made things a bit worse than they were in the beginning. So, instead of pushing the envelope and using the biggest plugs they had, he pretty much called it quits. And I'm very grateful for that--that he would put his patient's wellness and overall health before his own want for a successful catheterization.&lt;br /&gt;&lt;br /&gt;We do have excellent doctors. Dr Ferry is the guy parents across the globe come to because other doctors where they live say there's nothing they can do for their child's heart. We read numerous stories of parents who were glad they went to Dr Ferry, and that he was the only doctor out of many who said, "Let's give it a try!" or "Oh, I can do that." He's such a nice guy and he really cares about all of his patients. So, understandably, we were both very comfortable having him as Jack's doctor, and we knew he'd try his hardest without trying to push things too far. He's a very genuine man. It seems like he's one of the few surgeons left who likes his job for what he does for people and not necessarily for the money.&lt;br /&gt;&lt;br /&gt;Anyway, we aren't happy how things turned out, and it's very hard to get through the day without crying. But, we're hanging in there and just trying to get our minds on to the next step. We're keeping a closer eye on Jack, being as his hole is much larger. I don't know if a lot of his behavior is because he's still getting over the effects of anesthesia, or because of the surgery itself. But we're taking notes, and going to let his cardiologist know in a week how he's been doing.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1878398186075195430?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1878398186075195430/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1878398186075195430&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1878398186075195430'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1878398186075195430'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/jacks-story-part-2-dr-ferry.html' title='Jack&apos;s story: Part 2 -- Dr Ferry'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-8012358207094087199</id><published>2007-08-09T22:05:00.000-07:00</published><updated>2007-08-09T22:16:59.313-07:00</updated><title type='text'>Jack's story: Part 1 -- The Hospital</title><content type='html'>Yesterday, we got to Cedars-Sinai at about 8am. We waited in the waiting room. After a while, a nurse came out, doing her rounds (she would come out periodically and update the families on what was going on in surgery/&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_0"&gt;cath&lt;/span&gt; lab), and told us they took a baby in ahead of us so it would be a couple more hours (this was a different baby than the open-heart one). We were supposed to go in at 10am. At 11am, she came out again, and said it would be at least another hour. We were kept company by the very large Italian/Mediterranean (not quite sure which) family whose 9-day old baby was having open-heart surgery. At 12am, they called us into the holding area.&lt;br /&gt;&lt;br /&gt;They took Jack's vitals and did all the paperwork. The anesthesiologist came and we did a "practice run" with him holding Jack for a bit, then giving him back to me. He told me that he would be back in a few minutes to do it again, but we weren't allowed to let Jack feel anything was different (no goodbyes, no kisses....no dramatics, basically). Luckily, I hug and kiss Jack every day, so he didn't think it was weird that I spent the next few minutes doing that and singing to him. The anesthesiologist came back, and I handed Jack over. He told Jack that he would show him another baby in the area, and said Jack could play with his computer, too. It was very cute, and Jack didn't cry or fuss at all. Inside, though, I was all butterflies. :)&lt;br /&gt;&lt;br /&gt;They led us out of the holding area, and told us it would be another couple of hours. We told the volunteer at the front desk that we were going to get some lunch. We spent an hour eating, making phone calls, and just trying to gather ourselves for the long wait. At 2pm, we went back to the waiting room. The nurse came out a couple more times and told us they were "fiddling" with the different devices, to see which would fit. Around 3pm, the nurse came out again and said Jack was stable and fine, and still asleep on the table. She told us that Dr Ferry would be out in a few minutes to talk to us.&lt;br /&gt;&lt;br /&gt;Dr Ferry came out. He told us that when they put the &lt;a href="http://www.heartsite.com/html/tee.html"&gt;TEE (&lt;span class="blsp-spelling-error" id="SPELLING_ERROR_1"&gt;transesophageal&lt;/span&gt; &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_2"&gt;echocardiogram&lt;/span&gt;)&lt;/a&gt;, they found that the membrane separating the upper right and left chambers was like &lt;span class="blsp-spelling-error" id="SPELLING_ERROR_3"&gt;swiss&lt;/span&gt; cheese. There were a bunch of tiny holes everywhere, not just the 2 they thought they were dealing with. They tried every device they had, but every time they would put a bigger patch in, another hole would tear, making the hole even bigger. That, and the membrane isn't strong enough to keep a patch in place. So, now he has one big hole that's about 22-24mm.&lt;br /&gt;&lt;br /&gt;He said they'll have to do open-heart surgery, but not right away, though. We're to go for a follow-up appointment with his original cardiologist, Dr Wong, in a week, and then we'll probably get referred to a cardiac surgeon from there. He also mentioned that now there's quite a bit of blood shunting (passing) back and forth between the two chambers.&lt;br /&gt;&lt;br /&gt;After Dr Ferry talked to us, we practically rushed to go outside and make all the necessary phone calls. I was very upset.&lt;br /&gt;&lt;br /&gt;When we got back upstairs, we had to wait another hour before we could be taken back to the holding area to see Jack. He was awake, and not liking it, but I had to hold him and put pressure on his wound for an hour. Very difficult. We spent the night at the hospital, and they released us this morning, around 10am. The nurses all knew Jack, and his night nurse said he didn't even twitch or wake once during the night when she came in to check his vitals and his surgery site. We had to keep him lying flat until 8pm last night, which he didn't like, but after that he was much happier.&lt;br /&gt;&lt;br /&gt;&lt;br /&gt;We're all doing pretty well. Jack's doing great--you can't even tell he had surgery. He's such a trooper. When I talked to my friend, briefly, yesterday, she said, "Well, God made Jack really strong for a reason." I couldn't agree more. He's the strongest 2-year old I've seen yet, and there's definitely a reason for it.&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-8012358207094087199?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/8012358207094087199/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=8012358207094087199&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8012358207094087199'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/8012358207094087199'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/jacks-story-part-1-hospital.html' title='Jack&apos;s story: Part 1 -- The Hospital'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry><entry><id>tag:blogger.com,1999:blog-1256736395250901900.post-1937549567679242904</id><published>2007-08-09T21:48:00.000-07:00</published><updated>2007-08-09T22:05:06.198-07:00</updated><category scheme='http://www.blogger.com/atom/ns#' term='doctor'/><category scheme='http://www.blogger.com/atom/ns#' term='jack'/><title type='text'>In the beginning...</title><content type='html'>&lt;span style="font-family: trebuchet ms;"&gt;At 9 months old, my youngest son Jack was diagnosed with a heart murmur. At 10 months old, he was diagnosed with &lt;a href="http://www.childrenshospital.org/az/Site477/mainpageS477P0.html"&gt;ASD--Atrial Septal Defect&lt;/a&gt;. His was different in that there are 2 holes in the membrane separating the left and right upper chambers of his heart.&lt;br /&gt;&lt;br /&gt;Thereafter, every 6 months, Jack had a cardiology appointment where they'd do an &lt;a href="http://en.wikipedia.org/wiki/Electrocardiogram"&gt;EKG&lt;/a&gt; and an &lt;a href="http://www.nlm.nih.gov/medlineplus/ency/article/003869.htm"&gt;echocardiogram&lt;/a&gt;. At one point, Jack's doctor said the holes were getting smaller. At his last appointment, he told us that because of the location of the holes, they likely hadn't gotten smaller--they're very difficult to measure anyway.&lt;br /&gt;&lt;br /&gt;We went through a process that took about 2 months: we talked to &lt;a href="http://www.csmc.edu/2921.html"&gt;Dr Ferry&lt;/a&gt;, who said he would try to perform catheterization on Jack and close his holes using a sort of mesh plug shaped like a dumbbell; we had to wait for authorization from our medical group for the catheterization to take place at Cedars-Sinai, as no other hospital in the Valley would do it; and, we finally had to wait for the weeks to turn into days until Jack went into surgery this past Wednesday.&lt;br /&gt;&lt;br /&gt;I'll save that for another post.&lt;br /&gt;&lt;/span&gt;&lt;div class="blogger-post-footer"&gt;&lt;img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/1256736395250901900-1937549567679242904?l=followingjacksheart.blogspot.com' alt='' /&gt;&lt;/div&gt;</content><link rel='replies' type='application/atom+xml' href='http://followingjacksheart.blogspot.com/feeds/1937549567679242904/comments/default' title='Post Comments'/><link rel='replies' type='text/html' href='http://www.blogger.com/comment.g?blogID=1256736395250901900&amp;postID=1937549567679242904&amp;isPopup=true' title='0 Comments'/><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1937549567679242904'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/1256736395250901900/posts/default/1937549567679242904'/><link rel='alternate' type='text/html' href='http://followingjacksheart.blogspot.com/2007/08/in-beginning.html' title='In the beginning...'/><author><name>Emily</name><uri>http://www.blogger.com/profile/03845681960590391465</uri><email>noreply@blogger.com</email><gd:image rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='32' src='http://bp0.blogger.com/_ISebrzUTIis/R2imEFiinjI/AAAAAAAAAUc/iSy-00a6afU/S220/38176c.jpg'/></author><thr:total>0</thr:total></entry></feed>
